The intent of this website is to provide a general background about PNH (Paroxysmal Nocturnal Hemoglobinuria), and to help define areas the reader may choose to further investigate.
This site is mainly based on the opinions and experiences of the members, and the information obtained cannot be guaranteed as it is for informational purposes only. Some of the information on this site discusses medical issues; however, it is not intended as medical advice and should not be construed as such.
The site is not an attempt to practice medicine. It cannot be used as a substitute for medical diagnosis or treatment, nor should this information override any decisions made with a qualified health care provider.
All readers are strongly advised to consult with a hematologist and discuss these materials, individual questions, and concerns with their physician.
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This web site contains links to other sites. The PNH Support Group is not responsible for the accuracy of information found on other sites and makes no representations regarding the content of these links.
Links to external web sites are not intended to imply an endorsement of the content of these sites. We encourages users of this website to critically evaluate information found on the Internet and to verify information by using many sources. Please consult your doctor on all major medical and health decisions.
PNH Support Group welcomes links to our site. Other organizations and individuals may freely link to us.