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-: Main Menu :-    Home  About the Group  Medical Information  PNH FAQ  PNH Files  PNH Glossary  PNH Physicians  PNH Websites  Member Community  PNH Forums  Members List  Members Chat  Photo Album  Member Journals  Your Account  PNH Public Site  PNHDisease.org   User Info   Welcome, Anonymous Nickname Password (Register) Membership: Latest: Palmas916 New Today: 0 New Yesterday: 0 Overall: 1412 People Online: Visitors: 18 Members: 1 Total: 19 Online Now: 01 : Tamir   Donations   Donations can be made for PNH Research through the AAMDS Website   Click on Logo Under "This gift is made in honor of", please put "PNH Research"   Amazon Search   PNH Research and Support Foundation Referral program with amazon.com

[ Links Main | Add Link | New | Popular | Top Rated | Random ] Category: Main/Support Organizations Sort Links by: Title (A\D) Date (A\D) Rating (A\D) Popularity (A\D) Sites currently sorted by: Popularity (Most to Least Hits) marrowforums.org   Description: At marrowforums, patients and their families, friends, and caregivers assist and support each other through discussion and sharing. The diseases are rare, but the patients and those who care about them are not alone! Added on: 05-Feb-2007 Hits: 5335 Rate this Site AA-PNH Info  Description: Experiences, Informations and suggestions for people concerned with AA and/or PNH. Integrated forum for exchanges and interactions between concerned. For German-Speakers. Added on: 23-May-2005 Hits: 1676 Rating: 6.0 (1 Vote) Rate this Site | Details Walk for PNH  Description: Information on a fundraising walk for PNH to be held in Riverview Florida April 1 2006. Added on: 21-Apr-2006 Hits: 1556 Rate this Site PNHziekte · De zeldzame bloedziekten AA en PNH  Description: Dutch email support group for aplastic anemia and PNH. Added on: 30-Oct-2003 Hits: 653 Rate this Site Aplastische Anaemie e.V.  Description: Disease information, news and field reports about aplastic anaemia and different aplastic anaemia disease forms (including PNH, MDS) for the German speaking area. Added on: 29-Dec-2003 Hits: 484 Rate this Site L' Hemoglobinurie Paroxystique Nocturne  Description: First French website only dedicated to PNH, with worldwide interesting links and medical publications. Added on: 30-Oct-2003 Hits: 482 Rating: 9.0 (1 Vote) Rate this Site | Details Aplastic Anemia and Myelodysplasia Association of Canada  Description: Canadian support network for patients, families and medical professionals dealing with aplastic anemia, myelodysplasia, or PNH. Added on: 19-Oct-2003 Hits: 472 Rate this Site Aplastic Anemia & MDS International Foundation, Inc.  Description: AA&MDSIF serves as a resource for patient assistance, advocacy, and support; provides educational materials and medical information; and supports research to find treatments and cure for Aplastic Anemia (AA), Myelodysplastic Syndromes (MDS), and related bone marrow diseases. Added on: 19-Oct-2003 Hits: 463 Rating: 10.0 (1 Vote) Rate this Site | Details Paroxysmale Nächtliche Hämoglobinurie  Description: German PNH site. For patients from patients. Added on: 30-Oct-2003 Hits: 439 Rate this Site PNH en AA en algemene info over andere bloedziekten  Description: Dutch AA and PNH website. Added on: 02-Nov-2003 Hits: 413 Rate this Site Select Page: 1 2   [ Next Page >> ]

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