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Donations can be made for PNH Research through the AAMDS Website
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Under "This gift is made in honor of", please put "PNH Research"
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PNH Research and Support Foundation Referral program with amazon.com
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| Most Popular - Top 25 | Show Top: [ 10 - 25 - 50 | 1% - 5% - 10% ]
| marrowforums.org 
Description: At marrowforums, patients and their families, friends, and caregivers assist and support each other through discussion and sharing. The diseases are rare, but the patients and those who care about them are not alone!
Added on: 05-Feb-2007 Hits: 5335
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Category: Support Organizations
PNH Patient Information
Description: From Leeds Teaching Hospital
Added on: 24-Mar-2004 Hits: 2586 Rating: 9.8 (2 Votes)
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Category: What is PNH?
The PNH Research and Support Foundation
Description: Approximately 90% of the money raised will be given to the Aplastic Anemia and MDS International Foundation (AA&MDSIF) with the specification that it be restricted to a PNH research fund. The remaining 10% of funds will be used for needy patients to help with disease related expenses not covered by insurance.
Added on: 28-May-2004 Hits: 2522 Rating: 10.0 (2 Votes)
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Category: Donate Now!
PNH Patient Registry
Description: The PNH Patient Registry is the first, comprehensive, observational, multi-national research initiative documenting clinical and humanistic outcomes in the management of patients with the disease. Sponsored by Alexion Pharmaceuticals.
Added on: 24-Sep-2004 Hits: 2325 Rating: 10.0 (3 Votes)
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Category: Hospitals, Universities & Clinical Trials
AA-PNH Info
Description: Experiences, Informations and suggestions for people concerned with AA and/or PNH. Integrated forum for exchanges and interactions between concerned. For German-Speakers.
Added on: 23-May-2005 Hits: 1677 Rating: 6.0 (1 Vote)
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Category: Support Organizations
Nate Pickowicz - Tribute to Brittany
Description: Click on Discography to see the Tribute to Brittany Hageman CD. 50% goes to fund PNH research.
Added on: 03-May-2004 Hits: 1634 Rating: 10.0 (1 Vote)
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Category: Donate Now!
Walk for PNH
Description: Information on a fundraising walk for PNH to be held in Riverview Florida April 1 2006.
Added on: 21-Apr-2006 Hits: 1556
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Category: Support Organizations
PNH
Description: From Memorial Sloan-Kettering Cancer Center
Added on: 30-Oct-2003 Hits: 1526 Rating: 10.0 (1 Vote)
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Category: What is PNH?
PNH Source
Description: Informational website sponsored by Alexion
Added on: 05-Feb-2007 Hits: 1486
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Category: Patient Resources
Angel Flight America
Description: We provide flights of hope and healing by transporting patients and their families in private planes, free of charge, to hospitals for medical treatment.
Added on: 08-Jan-2005 Hits: 1399
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Category: Patient Resources
AAMDS
Description: The Aplastic Anemia & MDS International Foundation is the oldest and largest patient advocate and support organization for aplastic anemia, myelodysplastic syndromes (MDS), Paroxysmal Nocturnal Hemoglobinuria (PNH), and other bone marrow diseases, providing life-saving hope, knowledge, and support to hundreds of thousands of patients and their families around the world.
Added on: 05-Feb-2007 Hits: 1181
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Category: Donate Now!
Prednisone
Description: RxList’s information on the steroid Prednisone.
Added on: 15-Nov-2003 Hits: 972 Rating: 10.0 (1 Vote)
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Category: Medications
Alison’s website
Description: Alison's website.
Added on: 30-Oct-2003 Hits: 919
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Category: Members' Websites
Duke University PNH Clinic
Description: Duke University's PNH Clinic & PNH Research Committee website
Added on: 19-Sep-2003 Hits: 917
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Category: Hospitals, Universities & Clinical Trials
Flow Cytometric Diagnosis of PNH
Description: Medical description of flow cytometric diagnosis of PNH
Added on: 19-Sep-2003 Hits: 914
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Category: Medical Articles
Tim's PNH Page
Description: Tim's PNH Page.
Added on: 29-Dec-2003 Hits: 909
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Category: Members' Websites
Desferal (Deferoxamine)
Description: RxList’s information on Desferal.
Added on: 15-Nov-2003 Hits: 850
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Category: Medications
Sandrine's Website
Description: Sandrine's website (French).
Added on: 31-Jan-2004 Hits: 773 Rating: 10.0 (1 Vote)
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Category: Members' Websites
Leeds Teaching Hospital
Description: Click on the PNH Directory menu on the left pane
Added on: 24-Mar-2004 Hits: 770
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Category: Hospitals, Universities & Clinical Trials
Johns Hopkins (Sidney Kimmel Comprehensive Cancer Center)
Description: John Hopkins, Maryland, USA
Added on: 31-Jan-2004 Hits: 762
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Category: Hospitals, Universities & Clinical Trials
Anti-Thymocyte Globulin (ATG)
Description: Anti-thymocyte globulin to treat aplastic anemia.
Added on: 31-Jan-2004 Hits: 738
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Category: Medications
Alexion Pharmaceuticals' Products Page
Description: Alexion Pharmaceuticals' products page with information about the status of Eculizumab
Added on: 24-Jan-2004 Hits: 712 Rating: 10.0 (3 Votes)
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Category: Hospitals, Universities & Clinical Trials
PNHziekte · De zeldzame bloedziekten AA en PNH
Description: Dutch email support group for aplastic anemia and PNH.
Added on: 30-Oct-2003 Hits: 653
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Category: Support Organizations
Clinical Trials (National Institutes of Health)
Description: Clinical trials listing for the US.
Added on: 15-Nov-2003 Hits: 651
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Category: Hospitals, Universities & Clinical Trials
AA and PNH in the Netherlands
Description: Explanation about AA and PNH in Dutch.
Nederlandstalige site over AA en PNH.
Added on: 31-Jan-2004 Hits: 613
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Category: Members' Websites
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Medical Information
Member Community
PNH Public Site
